jueves, 11 de diciembre de 2025

Survey launched on what helps people live with a rare or undiagnosed condition

https://www.eurordis.org/rare-barometer-survey-launch-2025/ Rare Barometer Our current EURORDIS Rare Barometer survey will close at the end of this week! The survey is focused on what helps people living with a rare or undiagnosed condition and their families handle daily stress, participate in work or education, and stay socially connected, and is accessible worldwide in 25 languages. Make sure to take the survey before Sunday 14 December! https://www.sphinxonline.com/surveyserver/s/EURORDIS75/MH_interface/questionnaire.htm

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