jueves, 11 de diciembre de 2025

Podcast: Rare on Air

https://www.eurordis.org/rare-on-air/ Rare Disease Day bonus series Last month, we kicked off the 100-day countdown to Rare Disease Day with our Rare on Air Stories bonus series! To launch the new season, we read the story of Ahmed from Pakistan, who shared how living with Primary Ciliary Dyskinesia (PCD) has shaped his perspective and strengthened his purpose after a thriving global career. You can also listen to the story of Annarita, who lives with Charcot-Marie-Tooth disease type 2Z. Diagnosed in her late teens, she reflects on the shift from fear and resignation toward acceptance and the unexpected route that brought her back to the thing she loves most: dance. https://www.rarediseaseday.org/

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