EURORDIS-Rare Diseases Europe feedback to the European Commission consultation: Biotech Act October 2025

Biotech Act This month, following engagement with our members, EURORDIS submitted its position to the European Commission on the forthcoming EU Biotech Act. Our position outlines measures at the EU’s disposal to boost rare disease innovation, calling for an EU framework to develop platform technologies, embed modern clinical trial designs, and formally recognise patient organisations as equal partners in biotech policy and research. https://download2.eurordis.org/membersnews/Feedback_on_Biotech_Act.pdf