https://www.eurordis.org/what-it-takes-to-get-the-erns-to-the-next-level/
ERNs Evaluation Report
Our ERN and Healthcare Director, Inés Hernando, has set out EURORDIS’ vision to strengthen the European Reference Networks (ERNs) by 2027. Elaborating on our latest report on the Five-Year Evaluation of the ERNs, Inés outlines five key priorities - including formalised patient partnership, sustainable funding, and deeper national integration - to help the ERNs realise their full potential and deliver better, fairer care for people living with rare and complex conditions.
Five-Year ERNs Evaluation Report: Actions for Improvement
https://www.eurordis.org/publications/five-year-erns-evaluation-report/
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