More than two decades of NIH research gives answers on a rare disease affecting bones, skin, and the endocrine system Fibrous dysplasia/McCune-Albright Syndrome is genetic with no cureMore than two decades of NIH research gives answers on a rare disease affecting bones, skin, and the endocrine system Fibrous dysplasia/McCune-Albright Syndrome is genetic with no cure

https://magazine.medlineplus.gov/article/more-than-two-decades-of-nih-research-gives-answers-on-a-rare-disease-affecting-bones-skin-and-the-endocrine-system?utm_medium=email&utm_source=govdelivery Why do patients with fibrous dysplasia/McCune-Albright Syndrome break their bones so easily? Or hit puberty as early as infancy? Or sometimes lose their vision and hearing? Doctors have tried to answer these questions for decades. Twenty-six years ago, researchers at NIH began piecing it together. Today, clinicians have more effective treatments for this rare disease. And patients have more tools to get the help they need. What is fibrous