CDC’s Sickle Cell Disease Surveillance History

The Centers for Disease Control and Prevention (CDC) and participating states began sickle cell disease (SCD) surveillance (monitoring) in 2010. SCD surveillance involves collecting information on diagnoses, treatment, and healthcare access for people with SCD in the United States. CDC and participating states developed many educational materials based on this information.

CDC coordinated these efforts as part of the three projects outlined below. All three used similar data sources, but each had a different funding source and amount. These differences influenced the number of participating states.