EURORDIS TV | www.eurordis.org

EURORDIS TV | www.eurordis.org

about a mother - director's cut

"When you get the diagnosis you don't have time to feel sorry for yourself or to dwell on it because you just have to fight for answers and for a treatment to keep your kids alive." Becky.


a short movie with Paola Cortellesi and with Becky, Eli and Ella
Directed by Mauro Mancini
Written by Mauro Mancini - Ugo
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EURORDIS TV

Compelling videos from the rare disease community on EURORDIS TV A short movie portraying how new technologies can allow us to build relationships with patients that we don’t know in real life. Meet Becky who travelled to Italy in search of a life-changing therapy for her children