EURORDIS TV | www.eurordis.org

EURORDIS TV | www.eurordis.org

EURORDIS TV

Compelling videos from the rare disease community on EURORDIS TV Liam´s Lodge, a respite care centre for rare diseases in Ireland Meet the Desmond Family from Cork. Rian, Alex and Holly-Ann Desmond with Mom & Dad! Rian & Alex have CFC.  In this video they describe what the Liam's Lodge respite care centre would mean to them