lunes, 11 de agosto de 2025

The fragile ecosystem: how federal policy changes threaten rare disease research and patient care +++++ Copyright © 2025 RARE Revolution Publishing Ltd. -

https://rarerevolutionmagazine.com/the-fragile-ecosystem-how-federal-policy-changes-threaten-rare-disease-research-and-patient-care/ My brother’s journey into the world of neurological challenges https://rarerevolutionmagazine.com/my-brothers-journey-into-the-world-of-neurological-challenges/ Navigating life with APDS2 and other rare diseases: Tasmin’s story https://rarerevolutionmagazine.com/navigating-life-with-apds2-and-other-rare-diseases-tasmins-story/ Expanding appreciation for the patient journey https://rarerevolutionmagazine.com/expanding-appreciation-for-the-patient-journey/ Science side-by-side https://rarerevolutionmagazine.com/science-side-by-side/ Copyright © 2025 RARE Revolution Publishing Ltd. -

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