lunes, 7 de julio de 2025

Navigating the complexities of the rare glomerular diseases C3G and primary IC-MPGN

https://us02web.zoom.us/webinar/register/WN_fG5Gj5r8QQadimusIa8Awg#/registration Join Our Glomerular Diseases RARE Rev-inar on July 8th! We are thrilled to invite you to our 20th RARE Rev-inar, focusing on glomerular diseases, specifically C3G and primary IC-MPGN. This vital discussion, supported by Apellis Pharmaceuticals, promises to be highly informative and engaging. Date: Tuesday, 8th July 2025 Time: 3.30 PM BST | 10:30 AM EST | Where: Online – register here: https://bit.ly/GlomerularDiseasesWebinar Our expert panel includes: Dr. Bradley Dixon: Professor of paediatrics-nephrology specialising in kidney diseases linked to complement system abnormalities. Lexi Pencis: Mother of Collette, diagnosed with C3 Glomerulopathy (C3G) at age six, offering a parent's perspective on managing intensive care pathways. Christina Gilchrist ("BLIND CHICK LIVING"): With over 20 years of experience navigating dialysis and two kidney transplants, co-manages a popular dialysis support group and hosts a podcast. Michael Gilchrist: Christina's husband and primary caregiver, co-managing their dialysis kidney support group. Michelle Williams: Diagnosed with plasma cell neoplasm and primary IC-MPGN in September 2023. The webinar will cover: Understanding the Journey: Diagnosis and early experiences with glomerular diseases. Living with and Managing the Disease: Insights into daily life, care pathways, and unmet needs. Hope for the Future: Discussions on research, support, and necessary changes in healthcare. Don't miss this opportunity to gain valuable insights and participate in a live Q&A session with our esteemed panellists. A link to articles and experiences from our digital spotlight, including an educational infographic, will be shared in the chat during the webinar.

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