CIENCIASMEDICASNEWS: enero 2025

viernes, 3 de enero de 2025

Addressing barriers to healthcare delivery for people with Alzheimer's with Alzheimer's disease and related dementias

https://www.news-medical.net/news/20250103/Addressing-barriers-to-healthcare-delivery-for-people-with-Alzheimers-with-Alzheimers-disease-and-related-dementias.aspx

Bridging the gap: differing perceptions of generalised myasthenia disease burden

https://rarerevolutionmagazine.com/bridging-the-gap-differing-perceptions-of-generalised-myasthenia-disease-burden/

Becker muscular dystrophy patients find hope in building a community

https://rarerevolutionmagazine.com/becker-muscular-dystrophy-patients-find-hope-in-building-a-community/

flok, pioneering patient-led research for inherited metabolic disorders (IMD)

https://rarerevolutionmagazine.com/flok-pioneering-patient-led-research-for-inherited-metabolic-disorders-imd/ To bring about a dramatic and wide reaching change in conditions and attitudes for the rare disease community. https://rarerevolutionmagazine.com/

RARE REV-inar episode 015: Complexities of genetic diagnosis of mitochondrial diseases 16 ene 2025 12:00 p. m.

https://us02web.zoom.us/webinar/register/WN_X5Dwp1NYR6idBch3K5yLtw#/registration What role have international organizations played in advancing mitochondrial disease advocacy? How has the collaboration between patient advocacy groups and researchers impacted the field? Join our next RARE Rev-inar on January 26th 2025

Warm autoimmune hemolytic anemia (wAIHA) Closing the gap: improving care for patients with wAIHA

https://rarerevolutionmagazine.com/digitalspotlight/closing-the-gap-improving-care-for-patients-with-waiha/

Military Exposures & Your Health - 2024 - Issue 15

https://www.publichealth.va.gov/exposures/publications/military-exposures/meyh-15/index.asp

Army Veteran’s kidney transplant was “flawless” “I encourage you to be an organ donor.”

https://news.va.gov/137225/army-veterans-kidney-transplant-was-flawless/

How we’re winning the fight to end Veteran homelessness Homeless executive director reflects on 2024 progress

https://news.va.gov/137268/how-were-winning-fight-end-veteran-homelessness/

Six suicide prevention resources all Veterans need to know Programs and initiatives for all Veterans, no matter when or how you served

Six suicide prevention resources all Veterans need to know Programs and initiatives for all Veterans, no matter when or how you served https://news.va.gov/137046/six-suicide-prevention-resources-veterans-know/

Tale of Two Tongues: Oral HPV Soars in Young Adults Liz Scherer +++

Tale of Two Tongues: Oral HPV Soars in Young Adults Liz Scherer https://www.medscape.com/s/viewarticle/tale-two-tongues-oral-hpv-soars-young-adults-2024a1000ax7?ecd=mkm_ret_250103_mscpmrk_onc_youth_etid7134120&uac=148436CN&impID=7134120 Many Young Adults Who Vaped As Teens Can't Shake the Habit John Daley https://www.medscape.com/s/viewarticle/many-young-adults-who-vaped-teens-cant-shake-habit-2024a1000b1l?ecd=mkm_ret_250103_mscpmrk_onc_youth_etid7134120&uac=148436CN&impID=7134120 Does Marijuana Harm Your Lungs? The Unclear Truth Aaron B. Holley, MD https://www.medscape.com/viewarticle/does-marijuana-harm-your-lungs-unclear-truth-2024a1000mou?ecd=mkm_ret_250103_mscpmrk_onc_youth_etid7134120&uac=148436CN&impID=7134120

Benefits of Playing Drums: Physical, Mental, and Social David J. Kerr, CBE, MD, DSc | January 02, 2025 0 1

https://www.medscape.com/viewarticle/benefits-playing-drums-physical-mental-and-social-2024a1000pfn

How Many Young Breast Cancer Survivors Struggle Financially? Edited by Gargi Mukherjee ++++

PATIENT OUTCOMES Preventive Surgeries Help Young BRCA Patients: New Data Do Risk-Reducing Surgeries Benefit BRCA Carriers With Early-Onset Breast Cancer History? Megan Brooks https://www.medscape.com/viewarticle/do-risk-reducing-surgeries-benefit-brca-carriers-early-onset-2024a1000myt?ecd=mkm_ret_250103_mscpmrk_onc_youth_etid7134120&uac=148436CN&impID=7134120 Unique Challenges, Top Concerns of Young Patients With CRC Identified What Matters Most for Young Patients With CRC: Survey Highlights Top Concerns Megan Brooks https://www.medscape.com/viewarticle/what-matters-most-young-patients-crc-survey-highlights-top-2024a1000ki2?ecd=mkm_ret_250103_mscpmrk_onc_youth_etid7134120&uac=148436CN&impID=7134120 CAR T for B-ALL: Game Changer for Young Patients? CAR T for B-ALL: Game Changer for Young Patients? Randy Dotinga https://www.medscape.com/s/viewarticle/car-t-b-all-game-changer-young-patients-2024a1000aq2?ecd=mkm_ret_250103_mscpmrk_onc_youth_etid7134120&uac=148436CN&impID=7134120 Financial Struggles of Young Breast Cancer Survivors How Many Young Breast Cancer Survivors Struggle Financially? Edited by Gargi Mukherjee https://www.medscape.com/viewarticle/how-many-young-breast-cancer-survivors-struggle-financially-2024a1000mg4?ecd=mkm_ret_250103_mscpmrk_onc_youth_etid7134120&uac=148436CN&impID=7134120

Young People's Gut Bacteria May Drive Colorectal Cancer Risk Lisa O'Mary

https://www.medscape.com/s/viewarticle/young-peoples-gut-bacteria-may-drive-colorectal-cancer-risk-2024a1000amd?ecd=mkm_ret_250103_mscpmrk_onc_youth_etid7134120&uac=148436CN&impID=7134120

Is Pancreatic Cancer Really Rising in Young People? Edited by Victoria Stern

https://www.medscape.com/viewarticle/pancreatic-cancer-really-rising-young-people-2024a1000l2u?ecd=mkm_ret_250103_mscpmrk_onc_youth_etid7134120&uac=148436CN&impID=7134120

Breast Cancer Rates Skyrocketing in Young Canadian Women Liz Scherer

https://www.medscape.com/viewarticle/breast-cancer-rates-skyrocketing-young-canadian-women-2024a1000955?ecd=mkm_ret_250103_mscpmrk_onc_youth_etid7134120&uac=148436CN&impID=7134120

Colorectal Cancer On the Rise in Young Adults David J. Kerr, CBE, MD, DSc

https://www.medscape.com/viewarticle/colorectal-cancer-rise-young-adults-2024a1000cta?ecd=mkm_ret_250103_mscpmrk_onc_youth_etid7134120&uac=148436CN&impID=7134120

Why Are More Cancers Being Diagnosed at a Young Age? Cristina Ferrario

https://www.medscape.com/viewarticle/why-are-more-cancers-being-diagnosed-young-age-2024a1000haw?ecd=mkm_ret_250103_mscpmrk_onc_youth_etid7134120&uac=148436CN&impID=7134120

jueves, 2 de enero de 2025

NIST Develops Genetic Material for Validating H5N1 Bird Flu Diagnostic Tests January 2, 2025

https://www.nist.gov/news-events/news/2025/01/nist-develops-genetic-material-validating-h5n1-bird-flu-diagnostic-tests

Aging may change some brain cells more than others NIH-funded mouse study provides roadmap for how aging may alter brain cell genetic activity.

https://www.nih.gov/news-events/news-releases/aging-may-change-some-brain-cells-more-others

Experimental CAR T-Cell Therapy Shrinks Tumors in Children with Deadly Brain Cancer

https://www.cancer.gov/news-events/cancer-currents-blog/2025/car-t-cell-therapy-gd2-diffuse-midline-gliomas?cid=eb_govdel

Bird flu uptick in US has CDC on alert for pandemic 'red flags': report CDC tracking bird flu cases closely, watching for signs of a pandemic Pilar Arias By Pilar Arias Fox News Published December 31, 2024 8:24am EST

Bird flu uptick in US has CDC on alert for pandemic 'red flags': report CDC tracking bird flu cases closely, watching for signs of a pandemic Pilar Arias By Pilar Arias Fox News Published December 31, 2024 8:24am EST https://www.foxnews.com/health/bird-flu-uptick-us-has-cdc-alert-pandemic-red-flags-report

Babies born in 2025 will begin Gen Beta, a brand-new generation Gen Beta, born between 2025 and 2039, will be 'shaped by an entirely different world,' experts predict Angelica Stabile By Angelica Stabile Fox News Published January 1, 2025 10:00am EST

Babies born in 2025 will begin Gen Beta, a brand-new generation Gen Beta, born between 2025 and 2039, will be 'shaped by an entirely different world,' experts predict Angelica Stabile By Angelica Stabile Fox News Published January 1, 2025 10:00am EST https://www.foxnews.com/health/babies-born-2025-begin-gen-beta-brand-new-generation

Warding off dementia means more reading, praying and listening to music: study Downtime decisions may have profound health impacts, say researchers By Maureen Mackey Fox News Published January 1, 2025 2:22pm EST

Warding off dementia means more reading, praying and listening to music: study Downtime decisions may have profound health impacts, say researchers By Maureen Mackey Fox News Published January 1, 2025 2:22pm EST https://www.foxnews.com/health/warding-off-dementia-reading-praying-listening-music-study

19 drug approvals in 2024 that had 'big clinical impact,' according to GoodRx The FDA approved these 'influential' medications and vaccines this year Angelica Stabile By Angelica Stabile Fox News Published January 1, 2025 4:30am EST

19 drug approvals in 2024 that had 'big clinical impact,' according to GoodRx The FDA approved these 'influential' medications and vaccines this year Angelica Stabile By Angelica Stabile Fox News Published January 1, 2025 4:30am EST https://www.foxnews.com/health/drug-approvals-2024-big-clinical-impact-according-goodrx

22 health care predictions for 2025 from medical researchers Expectations for cancer, neurology, cardiology, more from experts at Mass General Brigham Melissa Rudy By Melissa Rudy Fox News Published December 31, 2024 4:30am EST

22 health care predictions for 2025 from medical researchers Expectations for cancer, neurology, cardiology, more from experts at Mass General Brigham Melissa Rudy By Melissa Rudy Fox News Published December 31, 2024 4:30am EST https://www.foxnews.com/health/22-health-care-predictions-2025-medical-researchers

'I'm a psychologist — here's how to finally break your bad habits’ Simply deciding to stop a behavior isn’t enough, the expert says Melissa Rudy By Melissa Rudy Fox News Published January 2, 2025 4:30am EST

'I'm a psychologist — here's how to finally break your bad habits’ Simply deciding to stop a behavior isn’t enough, the expert says Melissa Rudy By Melissa Rudy Fox News Published January 2, 2025 4:30am EST https://www.foxnews.com/health/psychologist-heres-how-finally-break-bad-habits

Action on ultra-processed foods needs robust evidence The Lancet Gastroenterology & Hepatology

https://www.thelancet.com/issue/S2468-1253(24)X0012-6

The era of GLP-1 receptor agonists: costs versus benefits The Lancet Diabetes & Endocrinology

https://www.thelancet.com/issue/S2213-8587(24)X0013-3

Inorganic nitrates to prevent in-stent restenosis. Is nitric oxide the Philosopher's stone? Fernando Alfonso,Alexander Marschall,David Del Val

https://www.thelancet.com/journals/eclinm/issue/vol79nonull/PIIS2589-5370(24)X0013-9

Global, regional, and national burdens of heart failure in adolescents and young adults aged 10–24 years from 1990 to 2021: an analysis of data from the Global Burden of Disease Study 2021

https://www.thelancet.com/journals/eclinm/article/PIIS2589-5370(24)00577-7/fulltext

Global, regional, and national progress towards the 2030 global nutrition targets and forecasts to 2050: a systematic analysis for the Global Burden of Disease Study 2021

https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(24)01821-X/fulltext

The global epidemiology and health burden of the autism spectrum: findings from the Global Burden of Disease Study 2021

https://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(24)00363-8/fulltext

Global prevalence of autism in changing times

https://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(24)00412-7/abstract

The Lancet Child & Adolescent Health in conversation with Aisha Yousafzai and Saima Siyal on early childhood care and education December 02, 2024 • The Lancet Group

https://thelancetchildadol.buzzsprout.com/1135472/episodes/16169693-aisha-yousafzai-and-saima-siyal-on-early-childhood-care-and-education?utm_campaign=update-lanchi&utm_medium=email&_hsenc=p2ANqtz--c8m1cEUZCRC0pi_du1MrZ3bhEyI1WY0byHS-XU0_3ewgHAz_TLBRnNBMK0MvA9lR1pFTR2NnWYHCGo7RQbiu9K26I4w&_hsmi=340718228&utm_content=339174876&utm_source=hs_email

Universal newborn screening for congenital cytomegalovirus infection

https://www.thelancet.com/journals/lanchi/article/PIIS2352-4642(24)00237-2/abstract?utm_campaign=update-lanchi&utm_medium=email&dgcid=hubspot_update_feature_updatealerts_lanchi&_hsenc=p2ANqtz-9JeJ1PuYWmex936TRDWVkfuXpfXTxhY-EsKlOt-vK2krDbLnv9_I6NpZTA43ahWpTcSmlbX551uqSFAj1fnIy6q_cPdw&_hsmi=340718228&utm_content=339174876&utm_source=hs_email

Effect of a youth-led early childhood care and education programme on children's development and learning in rural Sindh, Pakistan (LEAPS): a stepped-wedge cluster-randomised implementation trial

https://www.thelancet.com/journals/lanchi/article/PIIS2352-4642(24)00304-3/abstract?utm_campaign=update-lanchi&utm_medium=email&dgcid=hubspot_update_feature_updatealerts_lanchi&_hsenc=p2ANqtz--6BLu3FFosncp2KtunPhcwI63ADN-EvIZln67AFnZOW5w2Se-SZpXr4Lsibmf8VslhEJRe8zf1yvpT_vyPH9_UiOCFaA&_hsmi=340718228&utm_content=339174876&utm_source=hs_email

Child-first societies are safe societies for all The Lancet Child & Adolescent Health

https://www.thelancet.com/journals/lanchi/issue/vol9no1/PIIS2352-4642(24)X0013-9

miércoles, 1 de enero de 2025

Psychosocial Support for Patients With Lipodystrophy By: Madaline Spencer| ++

Psychosocial Support for Patients With Lipodystrophy By: Madaline Spencer| https://checkrare.com/psychosocial-support-for-patients-with-lipodystrophy/ Patient Perspective: Challenges of Lipodystrophy By: Madaline Spencer| https://checkrare.com/patient-perspective-challenges-of-lipodystrophy/

Results from the HIMALAYA Clinical Trial for Hepatocellular Carcinoma By: Madaline Spencer|

https://checkrare.com/results-from-the-himalaya-clinical-trial-for-hepatocellular-carcinoma/

Positive Data for Investigational Treatment for ATTR With Cardiomyopathy By: Madaline Spencer|

https://checkrare.com/positive-data-for-investigational-treatment-for-attr-with-cardiomyopathy/

Real-World Data on Orladeyo Adherence and Persistence By: Madaline Spencer|

https://checkrare.com/real-world-data-on-orladeyo-adherence-and-persistence/

Hereditary Angioedema Patient’s Preferences in Treatment By: Madaline Spencer|

https://checkrare.com/hereditary-angioedema-patients-preferences-in-treatment/

An Overview of Alagille Syndrome: Prevalence, Etiology, Diagnosis, and Treatment By: CheckRare Staff|

https://checkrare.com/alagille-syndrome-prevalence-etiology-diagnosis-and-treatment/

Navigating Diagnosis and Treatment for Primary Biliary Cholangitis: The Integral Role of the Patient Voice By: CheckRare Staff|

https://checkrare.com/navigating-diagnosis-and-treatment-for-primary-biliary-cholangitis/

Type 1 Galactosemia: Significant Unmet Need, Lifelong Complications, and Current Management By: CheckRare Staff|

https://checkrare.com/galactosemia-disease-resource-center/

Rates of Severe Neutropenia and Infection Risk in Patients Treated With Deferiprone: 28 Years of Data By: CheckRare Staff|

https://checkrare.com/rates-of-severe-neutropenia-and-infection-risk-in-patients-treated-with-deferiprone/

THREE WORDS TO DESCRIBE YOUR YEAR AT RARE REVOLUTION "Creative, reflective and newness."

https://editions.rarerevolutionmagazine.com/html5/reader/production/default.aspx?pubname=&edid=17784672-cf4c-4bad-b1c0-41cc985a8f41&pnum=9

Health Technology Assessments in 2025: What changes are coming?

https://www.eurordis.org/what-happens-hta-2025/

U.S. Army Surgeon General focuses on Transformative Integration During Medical Logistics Visit

https://www.health.mil/

Military Health System Mental Health Hub

https://www.health.mil/Military-Health-Topics/Mental-Health?utm_medium=govdelivery&utm_source=email

Joint Pathology Center Advances Collaborative Medical Research to Improve Patient Care

https://health.mil/News/Articles/2024/12/20/Joint-Pathology-Center-Advances-Collaborative-Medical-Research-to-Improve-Patient-Care?utm_medium=govdelivery&utm_source=email

NCI's Clinical Trials Update for December 2024

https://content.govdelivery.com/accounts/USNIHNCI/bulletins/3c88b63?reqfrom=share

Stress

https://www.nccih.nih.gov/health/stress?nav=govd Stress is a physical and emotional reaction that people experience as they encounter challenges in life. When you’re under stress, your body reacts by releasing hormones that produce the “fight-or-flight” response. Your heart rate, breathing rate, and blood pressure go up, your muscles tense, and you sweat more. Occasional stress is a normal coping mechanism. However, long-term stress (also called chronic stress) may contribute to or worsen a range of health problems including digestive disorders, headaches, sleep disorders, and other symptoms. Stress may worsen asthma and has been linked to depression, anxiety, and other mental illnesses. https://files.nccih.nih.gov/press-reset-on-stress-flyer.pdf