jueves, 18 de abril de 2024

Rare Revolution

https://editions.rarerevolutionmagazine.com/html5/reader/production/default.aspx?pubname=&edid=17784672-cf4c-4bad-b1c0-41cc985a8f41&pnum=81 President of EURORDIS, Avril Daly, and our new Chief Executive Officer, Virginie Bros-Facer, have contributed to the latest edition of Rare Revolution. In their joint editorial article, Avril and Virginie highlight EURORDIS' key priorities over the coming months ahead of the European elections, which include improving diagnostics, integrating healthcare pathways, intersectional advocacy, and expanding access to rare disease treatments.

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