It will consume your life: 4 families' take on rare diseases G Kolata, NY Times, July 7, 2020

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 Rare Diseases

It will consume your life: 4 families' take on rare diseases
G Kolata, NY Times, July 7, 2020

Most seeking a cure for a rare genetic disease hope to recruit scientists and companies to do the work. But one determined couple took another route. They went back to school and became scientists themselves.