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EUROPEAN CONFERENCE ON RARE DISEASES & ORPHAN PRODUCTS
Patient Advocates Fellowship Programme
EURORDIS is offering patient fellowships for up to 40 patients’ advocates to attend the 8th European Conference on Rare Diseases & Orphan Products (ECRD 2016) taking place 26-28 May 2016 in Edinburgh, UK.
These fellowships aim at empowering patients’ advocates by offering a platform for networking opportunities, access to information and sharing experiences.
The programme covers:
- Registration (fee waivers or fee reimbursement)
- Travel (return trip economy fare flight or train)
- Accommodation (Up to 3 nights hotel accommodation in Edinburgh)
The total of the travel and hotel expenses reimbursed by EURORDIS cannot exceed 500 € per fellow.
Patient representatives wishing to benefit from this fellowship programme are invited to fill out and return the Patient Fellowship Programme Application Form here: http://www.rare-diseases.eu/wp-content/uploads/2013/08/Application_form_-fellowship-ECRD_2016_Edinburgh-2.doc
Deadline: 15 December 2015
Submissions: anja.helm@eurordis.org
Submissions: anja.helm@eurordis.org
Fellows will be selected based on their advocacy skills and objectives, by an ad hoc committee and notified by 15 January 2016.
Mutual Commitment: Selected patient fellows must be available to attend the EURORDIS Membership Meeting capacity-building workshops taking place on 26 May and all sessions of the ECRD and will be invited to send EURORDIS a short report after the Conference, to share their testimonies and analysis of their country’s situation with respect to access to rare disease information, treatment, care and services.
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