Ethics, Policy and Law
Communication of genetic test results to family and health-care providers following disclosure of research results
Graves KD, et al. Genet Med 2013 Oct
DREAMing of a patent-free human genome for clinical sequencing.
Kevin J McKernan et al. Nature Biotechnology, Oct 8
“I prefer a child with …”: designer babies, another controversial patent in the arena of direct-to-consumer genomics.
Sigrid Sterckx et al. Genetics in Medicine, Oct 3
“It’s our DNA, we deserve the right to test!” A content analysis of a petition for the right to access direct-to-consumer genetic testing
Yeyang Sut al. Personalized Medicine, Sep 2013
Life insurance: genomic stratification and risk classification
Joly Y, et al. Eur J Hum Genet 2013 Oct
PS3-13: Re-identification risk associated with sharing linked genomic and phenotypic data from the Kaiser Permanente Research Program on Genes, Environment and Health (RPGEH)
Walter L, et al. Clin Med Res 2013 Sep;11(3):148
UK push to open up patients’ data. Government faces obstacles to mining medical records.
Ewen Callaway, Nature Oct 15
Ethical issues in the use of biomedical data, PHG Foundation, Oct 18
Advance non-infringement ruling on BRCA patents sought, By Dr Philippa Brice, PHG Foundation, Oct 2
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