miércoles, 17 de abril de 2013

Undiagnosed Brain Diseases, the Community - RareConnect

Undiagnosed Brain Diseases, the Community - RareConnect

Welcome - Undiagnosed Brain Diseases Community

What is Undiagnosed Brain Diseases ?

An undiagnosed brain disease is a disease that nobody can explain and which lacks a name.
There are two types of Undiagnosed Brain Diseases: Stagnant - children are very sick from a very young age often at birth. They have severe congenital dysfunctions in the development of the brain.
Progressive brain disease - These children are usually symptom-free at birth. Some of them have symptoms that are not related to a severe brain disease. At some point in their childhood, they start to exhibit different types of symptoms. The symptoms worsen and often progress into a very complex neurological profile. The Diseases are often fatal.
Source: Participating patient organizations visible below
Undiagnosed Brain Diseases Resources
More members stories

Latest Member Stories

Undiagnosed Progressive Brain Disease

by helene_cederroth published 5 days ago No comment He developed as he should and looked as healthy as can be. He started play school in a small group to minimize the risk for infections and also bec...

My Boy Beckett: SYNGAP1 - Mutation on Chromosome 6

by monicadudleyweldon published about 22 hours ago No comment Please see my blog for more information:)

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.

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