SANT launches public consultation on rare diseases

https://www.europarl.europa.eu/news/en/press-room/20250227IPR27074/sant-launches-public-consultation-on-rare-diseases The European Parliament Committee on Public Health (SANT) has opened a public Consultation on Rare Diseases to identify the challenges faced by those living with a rare disease and the potential EU actions to address them. With SANT now a fully-fledged parliamentary committee, the consultation presents a key moment to advocate for better funding, cooperation, and recognition of our community's unmet needs. EURORDIS' response highlights policy priorities, and you can submit your own response by 31 March! For questions or feedback, contact valentina.bottarelli@eurordis.org. Have your say: Help shape the future of rare disease policy in Europe The European Parliament’s Committee on Public Health (SANT), newly established as a fully-fledged committee, is responsible for shaping EU policies on healthcare, pharmaceutical legislation, and public health. It has now launched a Consultation on Rare Diseases, seeking input from patients, caregivers, researchers, healthcare professionals, and organisations working in the field. https://www.eurordis.org/publications/eurordis-submission-sant-consultation/