Rare Diseases International is the global alliance of people living with a rare disease of all nationalities across all rare diseases

RDI brings together national and regional rare disease patient organisations from around the world as well as international rare disease-specific federations to create the global alliance of rare disease patients and families.

RDI’s mission is to be a strong common voice on behalf of all people living with a rare disease around the world, to advocate for rare diseases as an international public health priority and to represent its members and enhance their capacities.