viernes, 7 de diciembre de 2012

Rare Disease Day ® 2013

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Rare Disease Day ® 2013


Friends of Rare Disease Day

A way for you or your organisation to share what you will do this year
Friends of Rare Disease Day Patient Organisations, health professionals, researchers, drug developers and public health authorities part of an organisation and having an interest in rare diseases are invited to join this year's campaign. Individual patients and families are encouraged to follow us on Twitter, visit our Facebook page and Tell your story on our website by sharing your pictures and videos.

Joining hands

Joining hands around the world for rare diseases!
Joining hands Whether you are with your family at home, 10 people in an office, 100 people at a conference or 1000 people at a public gathering: RAISE AND JOIN YOUR HANDS to show your solidarity with rare disease patients around the world!

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