Personal Genome Project Canada Launches
December 9, 2012
Canadian flag. Thanks to flickr user: ianalexandermartin (CC-BY-NC)
After several years of work, I am very happy to say that PGP-Canada has officially launched! I have had the great pleasure of working with the team led by Stephen Scherer at University of Toronto and the Hospital for Sick Kids to help organize a Canadian Personal Genome Project (PGP-Canada). This story stretches all the way back to July 2006 when George Church and his wife Ting Wu went to Toronto to speak about the Personal Genome Project. Read the press release from University of Toronto.
The Toronto Globe and Mail has created an amazing series about PGP-Canada and personal genomics generally called “Our Time to Lead: The DNA Dilemma”: http://www.theglobeandmail.com/news/national/time-to-lead/
The content is really impressive in its scope, detail, balance and emotion. Especially touching are the videos exploring the human condition through the lens of individuals coping with disease and genetic risk. Altogether the series includes articles, videos, a poll, a digital game and other interactive material. A live debate about the risks and rewards of genetics research is schedule for December 18th.
For ease of navigating, I organized the content for you into 4 sets of links:
Series homepage:
- Interactive: Why Science Wants Your Genome
- Editorial: Awaiting our Personal Genome (by Pierre Meulien, CEO of Genome Canada)
Personal Genome Project and Public Genomics
- Would you make your DNA and health data public if it may help cure disease?
- Poll: Gambling with our DNA: Would you share your genetic profile?
- Video: The Personal Genome Project: A brave new world for science and privacy
- PDF Sidebar: Scroll through the Canadian Personal Genome Project’s consent form
Case Studies: Genetics in the Real World
- Video: ’If I can help contribute, I’m happy to be part of that research’ (individual with Retinitis Pigmentosa advocates for research)
- Video: Cancer in the family: Sisters search for answers (family struggling with breast cancer looks to genomics)
- Video: A genetic test solves a hereditary mystery and saves a life (individual coping with family history of stomach cancer optimistic)
- Video: Alberta couple struggles with the results of a genetic test (family deals with test results for Huntington’s Disease)
These stories are touching and inspiring. I have to say that I’m compelled to give hugs to all of these people.
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