domingo, 6 de mayo de 2012

AED Pregnancy Registry ▲ The North American AED Pregnancy Registry


In This Issue
Registry Publishes Monotherapy Findings
Help Inform Your Patients
Win a $400 American Express Gift Card
small AED logo Who Can Enroll?

The Registry is currently enrolling pregnant women who are taking AEDs for any reason.  

Participating in the Registry only requires 3 telephone interviews. The first interview takes 20 minutes to complete and the next two take 5 minutes each.  

All information is kept strictly confidential. We are also recruiting controls, please see below for details.
Enrollment is open to women during any stage of pregnancy, but not after the birth of the infant. Ideally, the Registry would prefer to enroll women before they reach the 16th week of pregnancy, or before any prenatal screening.  

To enroll, women must call the Registry TOLL FREE at 1-888-233-2334.

For more information, please visit our web site 

Registry Publishes Monotherapy Findings

The North American Antiepileptic Drug (AED) Pregnancy Registry announces new findings on the comparative safety of AEDs during pregnancy. In addition to updated information on some previously-reported anticonvulsive medications, the report introduces cumulative data on many of the newer generation AEDs, such as lamotrigine (Lamictal®) and levetiracetam (Keppra®).

The Registry has found that the prenatal use of traditional antiepileptic medications, such as valproate (Depakote®) and phenobarbital, is associated with a higher risk of major malformations than use of the newer generation AEDs. However, among the newer anticonvulsants, topiramate (Topamax®) is associated with an increased risk of oral clefts. These results are published in the May 2, 2012, online issue of Neurology®, the medical journal of the American Academy of Neurology.  Click here to see data, and read more.  

Help inform your patients about the Registry
AED poster

Health care providers, would you like to receive a Registry poster to be displayed in your waiting/exam rooms? We have developed a new poster to serve as an informative source for women, as well as a reminder for you to discuss the Registry with your patients. The poster features tear-off cards that women can take with them after they leave your office.

If you are interested in receiving a poster in the mail (free of charge), please email or call toll-free 1-888-233-2334 with the quantity of posters you'd like as well as your name and mailing address. In addition, we have informational tri-fold brochures available, which you can also request via email.

Has your contact information changed?

If you are a current Registry participant and your phone number or mailing address has changed or will change before the birth of your baby, please let us know. You can call us toll free at 1-888-233-2334, or email us at

It is important for us to have your updated contact information so that we can contact
you to complete your file and keep you
informed about the upcoming release of our
latest research findings.

Would you like to win an American Express Gift Card?

Refer a friend or family member to enroll in our control group, and you and your friend could win a $400 American Express Gift Card!

As you may already know, the Registry is currently recruiting women to participate in our control group. If you know someone who could serve as a
control, please ask her to call us TOLL FREE:

In order to participate as a control, a woman must currently be pregnant and not taking any antiepileptic medication of any kind.

As a token of our appreciation, for every friend or family member you refer who enrolls as a control with the Registry, you will both be entered in a drawing to win a $400 American Express Gift Card!

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