miércoles, 22 de octubre de 2014

SAMHSA News: Building the Workforce, the New Strategic Plan, and More

SAMHSA News: Building the Workforce, the New Strategic Plan, and More


We’ve all heard it: stress and work overload that leads to drinking alcohol more frequently.

The Affordable Care Act has made behavioral health care more accessible. It has also increased the need for trained service providers. SAMHSA recently launched a new strategic initiative to address the workforce shortage.

SAMHSA just released "Leading Change 2.0," its strategic plan for fiscal years 2015 to 2018. Check out the six Strategic Initiatives that will support and promote behavioral health across the Nation!
People with a serious mental illness typically experience the first signs during adolescence or early adulthood. Yet long intervals frequently occur before they receive assistance. SAMHSA is helping states use part of their Community Mental Health Services Block Grant to address the need.
Hospital emergency rooms are not the only option when a mental health crisis occurs. Learn more about crisis services that offer an array of prevention and response alternatives.
New findings show that using alcohol early in life can increase the odds of substance use issues in adulthood. SAMHSA programs and resources are available to prevent and reduce youth drug use.
SAMHSA's 2013 National Survey on Drug Use and Health shows areas of continued improvement—especially for youth.
SAMHSA's recently released annual report on federal and state efforts to comply with the Synar Regulation show that all states continue to meet their goals of reducing illegal tobacco sales to minors.
Looking for ways to prevent bullying? The Federal Partners in Bullying Prevention Summit highlighted successful strategies and resources to prevent bullying and promote a positive school climate.
A new SAMHSA Office of Tribal Affairs and Policy focuses on reducing behavioral health disparities among American Indian/Alaska Native populations.

New Draft Quality Measures in USHIK

New Draft Quality Measures in USHIK

Draft Electronic Quality Measures Available for Public Comment
The following draft electronic Quality Measures have been posted for public comment on AHRQ’s USHIK website:
  • HIV Screening
  • HIV Screening for Patients with Sexually Transmitted Infection (STI)
  • Oral Health Sealant for Children between 6 – 9 years
  • Oral Health Care Continuity for Children between 2 – 20 years
To access and comment on a draft measure, select the “Draft Measures” tab in USHIK and select the individual measure to view and provide comments. Users must authenticate to UMLS using their (free) UTS account credentials to view the associated value sets and codes. To submit feedback, select “Provide Feedback” on the individual quality measure’s page, fill out the form.  Alternatively, a user can submit feedback directly at the ONC Jira site in the project “Comments on eCQMs under development”. All feedback is sent to the measure developers and stewards, CMS, and ONC for review.
USHIK is an on-line, publicly accessible registry and repository of healthcare-related metadata, specifications, and standards. USHIK is funded and directed by the Agency for Healthcare Research and Quality (AHRQ) with management support and engagement from numerous public and private partners.
Visit the USHIK website at http://ushik.ahrq.gov
The USHIK team is interested in your feedback.  If you have questions or suggestions on how we can improve USHIK, please select the "Feedback/Help" button from the right side of the menu bar on any of the USHIK pages.

EURORDIS TV | www.eurordis.org

EURORDIS TV | www.eurordis.org

Think Again. Think NP-C campaign showreel
Think Again. Think NP-C is an international campaign, which aims to support healthcare professionals unfamiliar with Niemann-Pick type C disease (NP-C) to recognise the key signs and symptoms of NP-C. This will help patients by speeding up diagnosis to ultimately optimise care and treatment outcomes.

My story with CHM. - Choroideremia (CHM) community - RareConnect

My story with CHM. - Choroideremia (CHM) community - RareConnect


My story with CHM.

Written by suruna, published 4 months ago.
My story with CHM.

I have known since I' ve been a young girl that a blinding disease runs in my family. I'm now 29 years old. I was born in Lappland in Finland. My mother has always been very open about it, since she is a carrier of it. I was gene-tested 2008 and confirmed to be a carrier as well. Chm doesn't affect my sight, at least not that I'm aware of.
I have 5 siblings, 3 brothers, and 1 of them has chm. My two sisters are so young they haven't been tested yet.
I have a 6- years old son and he just got the diagnosis. We're waiting still the results from the gene test.
I'm very happy to have found this way to contact others with this disease and that I have a channel to get the latest information of treatments!
Written by suruna, published 4 months ago.

Latest Choroideremia (CHM) Community Activity

The Rare Disease Day 2015 theme and slogan: Living with a Rare Disease - Day-by-day, hand-in-hand

The Rare Disease Day 2015 theme and slogan: Living with a Rare Disease - Day-by-day, hand-in-hand

Eurordis, Rare Diseases Europe


The Rare Disease Day 2015 theme and slogan: Living with a Rare Disease - Day-by-day, hand-in-hand

Rare Disease Day logo

The Rare Disease Day 2015 theme Living with a Rare Disease pays tribute to the patients, families and caregivers who are impacted by rare diseases. The slogan Day-by-day, hand-in-hand evokes the solidarity between families, patient organisations and communities. 28 February 2015 marks the eighth Rare Disease Day and preparations are already getting underway in many areas.
The complex nature of most rare diseases, coupled with limited access to treatment and services, mean that family members are often the primary source of solidarity, support and care for people with rare diseases. Patient organisations can provide information, experience, resources and support for people Living with a Rare Disease.
Day-by-day, hand-in-hand, patients, families and organisations are joining forces to find common solutions, advocating for treatments, care, resources and services in solidarity with all stakeholders - caregivers, healthcare professionals, specialised social services, researchers, pharmaceutical companies, policy makers, and regulatory bodies.
For Rare Disease Day 2015 let's raise awareness for the daily challenges of Living with a Rare Disease.
Visit the Living with a rare disease section of the EURORDIS website to learn more about living day-by-day, hand-in-hand with a rare disease and the ways in which patients and families are meeting their challenges.
Created and coordinated by EURORDIS and organised with rare disease National Alliances around the world, the Rare Disease Day campaign raises awareness amongst the general public, policy makers, public authorities, industry representatives, researchers, and health professionals. Participation continues to grow each year since the first Rare Disease Day was held in 2008. Last year, hundreds of patient organisations in 84 different countries and regions worldwide got involved!
The rarediseaseday.org website for 2015 will launch soon, with all the information you need to create an event or find something happening where you live. To find out more, write to rarediseaseday@eurordis.org.
This Rare Disease Day, raise and join hands for people Living with a rare disease. Day-by-day, hand-in-hand we can make a difference!

Louise Taylor, Communications and Development Writer, EURORDIS
Page created: 22/10/2014
Page last updated: 21/10/2014

Update on Clinical Status of Ebola Patient at the NIH Clinical Center

Update on Clinical Status of Ebola Patient at the NIH Clinical Center

National Institutes of Health (NIH) - Turning Discovery Into Health



Related Links

Update on Clinical Status of Ebola Patient at the NIH Clinical Center

The NIH has received countless inquiries and expressions of support for Ms. Nina Pham, the Texas nurse who was admitted to the NIH Clinical Center Special Clinical Studies Unit on Thursday, October 16, with Ebola virus disease. The NIH Clinical Center staff has shared the general sentiments with her and Ms. Pham has expressed her gratitude for everyone’s concerns and well wishes. Ms. Pham’s clinical status has been upgraded from fair to good. No additional details are available at this time.
About the NIH Clinical Center: The NIH Clinical Center is the clinical research hospital for the National Institutes of Health. Through clinical research, clinician-investigators translate laboratory discoveries into better treatments, therapies and interventions to improve the nation's health. More information: http://clinicalcenter.nih.gov.
About the National Institutes of Health (NIH): NIH, the nation's medical research agency, includes 27 Institutes and Centers and is a component of the U.S. Department of Health and Human Services. NIH is the primary federal agency conducting and supporting basic, clinical, and translational medical research, and is investigating the causes, treatments, and cures for both common and rare diseases. For more information about NIH and its programs, visit www.nih.gov.
NIH...Turning Discovery Into Health®

Zika Virus, French Polynesia, South Pacific, [2] 2013 - Volume 20, Number 11—November 2014 - Emerging Infectious Disease journal - CDC

Zika Virus, French Polynesia, South Pacific, 2013 - Volume 20, Number 11—November 2014 - Emerging Infectious Disease journal - CDC

Volume 20, Number 11—November 2014


Zika Virus, French Polynesia, South Pacific, 2013

On This Page


In Response: I want to respond to the letter by Hancock et al. (1) regarding the previously published letter, Zika Virus, French Polynesia, South Pacific, 2013 (2). My comment aims to clarify an inaccuracy in the following sentence. “In 2007, the first Zika outbreak ever reported outside Africa and Asia was retrospectively documented from biological samples of patients on Yap Island, Federated States of Micronesia, North Pacific, who had received an incorrect diagnosis of dengue virus (DENV)” (2).
I recognize that this sentence does not provide an accurate description of the efforts in Yap State to investigate the outbreak and further confirm that it was caused by Zika virus (ZIKV). As specified in the article by Lanciotti et al. (3), outbreak investigations continued although initial laboratory testing suggested dengue virus as the causative agent: “In April 2007, an epidemic of rash, conjunctivitis, and arthralgia was noted by physicians in Yap State, Federated States of Micronesia. Laboratory testing with a rapid assay suggested that a dengue virus (DENV) was the causative agent. In June 2007, samples were sent for confirmatory testing to the Arbovirus Diagnostic Laboratory at the Centers for Disease Control and Prevention (CDC, Fort Collins, CO, USA).”
I apologize to the Yap Epinet Team for this inaccuracy, and I encourage the reader to consult the articles by Lanciotti et al. (3) and Duffy et al. (4) to get a complete description of the clinical and laboratory investigations conducted during the ZIKV outbreak in Yap State. If data and laboratory protocols (reverse transcription PCR) related to this first ZIKV outbreak in the Pacific had not been available to the scientific community, identification of ZIKV as the cause of an outbreak in French Polynesia in 2013 would have been greatly delayed.
Van-Mai Cao-LormeauComments to Author 
Author affiliation: Institut Louis Malardé, Papeete, Tahiti, French Polynesia


  1. Hancock WTMarfel MBel MZika virus, French Polynesia, South Pacific, 2013. [zzzz–zzzz.]Emerg Infect Dis2014;•••:20.
  2. Cao-Lormeau VMRoche CTeissier ARobin EBerry ALMallet HPZika virus, French Polynesia, South Pacific, 2013. Emerg Infect Dis.2014;20:10856DOIPubMed
  3. Lanciotti RSKosoy OLLaven JJVelez JOLambert AJJohnson AJGenetic and serologic properties of Zika virus associated with an epidemic, Yap State, Micronesia, 2007. Emerg Infect Dis2008;14:12329DOIPubMed
  4. Duffy MRChen THHancock WTPowers AMKool JLLanciotti RSZika outbreak on Yap Island, Federated States of Micronesia. N Engl J Med.2009;360:253643DOIPubMed
Suggested citation for this article: V.-M. Cao-Lormeau. Zika virus, French Polynesia, South Pacific, 2013 [letter]. Emerg Infect Dis [Internet]. 2014 Nov [date cited]. http://dx.doi.org/10.3201/eid2011.141380

DOI: 10.3201/eid2011.141380