Goal to Enroll 15,000 People in HBOC-specific Research Studies

Goal to Enroll 15,000 People in HBOC-specific Research Studies

Surveillance & Registries in Public Health Genomics

Facing Our Risk of Cancer Empowered (FORCE) is on a mission to enroll 15,000 people into hereditary breast and ovarian cancer research studies

The Familial Hypercholesterolemia CASCADE Registry:  CAscade SCreening for Awareness and DEtection of Familial Hypercholesterolemia

The Lynch Syndrome Screening Network (LSSN) The vision of the LSSN is to reduce the cancer burden associated with Lynch syndrome

Implementation of validated genomic applications can benefit from public health surveillance & registries-CDC Blog post: Feeling the genomic pulse of the United States (2011)

CDC/ATSDR National Amyotrophic Lateral Sclerosis (ALS) registry and biorepository

CDC birth defects tracking systems

PCORnet: The National Patient-Centered Clinical Research Network

CDC blog post: What gets measured gets done: Genomics, Surveillance Indicators, and Healthy People 2020 objectives