Ethics, Policy and Law

Genomics|Update|Current

Ethics, Policy and Law

Anonymizing patient genomic data for public sharing association studies
Fernandez-Lozano C, et al. Stud Health Technol Inform 2013;192:979
Ethical and legal implications of whole genome and whole exome sequencing in African populations
Wright GE, et al. BMC Med Ethics 2013;14:21
Mandatory extended searches in all genome sequencing: "incidental findings," patient autonomy, and shared decision making
Ross LF, et al. JAMA 2013 Jul;310(4):367-8
Reporting genomic sequencing results to ordering clinicians: incidental, but not exceptional
Green RC, et al. JAMA 2013 Jul;310(4):365-6
Return of secondary genomic findings vs patient autonomy: implications for medical care
Klitzman R, et al. JAMA 2013 Jul;310(4):369-70
Playing with heart and soul…and genomes: sports implications and applications of personal genomics.
Jennifer K. Wagner PeerJ Aug 2013
Regulating genomics: Time for a broader vision
Efy Vayena and Barbara Prainsack Sci Transl Med 14 Aug 2013: Vol. 5, Issue 198, p. 198ed12
Return of whole-genome sequencing results in paediatric research: a statement of the PG international paediatrics platform
Knoppers BM, et al. Eur J Hum Genet 2013 Aug