Study Identifies Social and Emotional Concerns of Food-Allergic Teens - FAAN

Study Identifies Social and Emotional Concerns of Food-Allergic Teens

Researchers Publish First Study to Measure Quality of Life in Teens With Food Allergies

FAIRFAX, Va. (Nov. 18, 2010) – Teens with food allergies are troubled by the social limitations of their food allergies as well as the burden that this medical condition can place on others, according to the findings of a newly published study concerning the quality of life of American teenagers with food allergy.

Funded by FAAN (the Food Allergy & Anaphylaxis Network), the study sought to create a validated instrument to measure quality of life. The results were published in the November issue of Annals of Allergy, Asthma & Immunology.

The survey could be used to help pinpoint emotional and social concerns that could be addressed through counseling. Earlier studies have shown that adolescents, who are more likely to be risk-takers, have the highest risk of death from food allergy reactions. This instrument may help identify those teens whose quality of life is significantly impacted by food allergies.

The questionnaire was created through a multi-step process involving interviews with teenagers with food allergy and a pre-survey of additional teenagers to create a final survey instrument. This was administered to 203 teens. Overall, teens with a history of anaphylaxis had a lower quality of life than those with no history of anaphylaxis.

The survey found that teens were troubled by:

•limitations on social activities,
•not being able to eat what others eat,
•the thought of being a burden to others because of their food allergies, and
•the thought that their school doesn’t provide enough education to others about food allergy.
Teens also felt limited in their ability to dine out and go on vacation. Among the variety of concerns, the researchers were surprised to find that the least impactful ones included carrying an epinephrine auto-injector or wearing medical identification jewelry.

“We use validated surveys like these in research to monitor how treatments hopefully improve life for allergy sufferers,” said Scott H. Sicherer, M.D., an author of the study, allergist, and professor at Mount Sinai School of Medicine in New York. “However, a very important result is that we have learned what areas of daily life are most impacted for these teens, which can help us target individual counseling and general programs for improving their quality of life and safety.”

These findings are interesting when contrasted to similar quality of life studies that have been conducted focusing on parents and children. Parents of children with food allergies have identified health concerns and stress about precautions they must take, while children with food allergies are most concerned about having to explain their food allergy to others.

“Teens with food allergies remain one of our main focuses here at FAAN, and this study provides us with great insight about their daily challenges,” said FAAN CEO Julia Bradsher.





About FAAN

Founded in 1991, FAAN (The Food Allergy & Anaphylaxis Network) is the world leader in information, resources, and programs for food allergy, a potentially life-threatening medical condition that afflicts approximately 12 million Americans, or one out of every 25. A nonprofit organization based in Fairfax, Va., FAAN has approximately 25,000 members in the U.S., Canada, and 58 other countries. It is dedicated to increasing public awareness of food allergy and its consequences, to educating people about the condition, and to advancing research on behalf of all those affected by it. FAAN provides information and educational resources about food allergy to patients, their families, schools, health professionals, pharmaceutical companies, the food industry, and government officials. For more information, please visit FAAN at www.foodallergy.org.



Media Contact
Jennifer Roeder
Director, Marketing and Media Communications
Direct: (703) 563-3061
Cell: (301) 639-4811
E-mail: jroeder@foodallergy.org
Twitter: @JenRoeder

full-text:
Study Identifies Social and Emotional Concerns of Food-Allergic Teens - FAAN