sábado, 19 de julio de 2025

Webinar: Rare Barometer survey on what helps people live with a rare or undiagnosed condition

https://www.eurordis.org/rare-barometer-webinar-what-helps/ 💬 Webinar: What helps people live with Rare or Undiagnosed condition ➡️ Register Now! 🗓️ Survey Dates: 11 September – 16 November 🗣️ Available in: 25 languages, accessible worldwide ⏰ 14:30 CET https://www.eurordis.org/rare-barometer/english/ Rare Barometer From 11 September to 16 November, our Rare Barometer programme will run its next survey on what helps people live with a rare or undiagnosed condition. On 11 September at 14:30 CEST, EURORDIS will host a webinar presenting both the survey and a communication toolkit to support its promotion. Open to everyone living with a rare condition and their families, both the survey and the toolkit will be available in 25 languages. Register now for the webinar!

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