JARDIN 101: The Purpose. The Plan. The Potential. April 2024

https://www.eurordis.org/jardin-101-explainer/ Patient registries EURORDIS is inviting holders of a patient registry to contribute to a new research initiative exploring how to better integrate data from patient registry holders into a wider ecosystem. EURORDIS is leading this initiative as a contribution to the EU's Joint Action on Integration of ERNs into National Healthcare Systems (JARDIN). Are you the holder of a patient registry? Contact Veronica Popa, our Digital Patient Engagement Manager, at veronica.popa@eurordis.org.