RARE DISEASE LEARNING CENTERS +++++

RARE DISEASE LEARNING CENTERS https://checkrare.com/rare-diseases-clinical-research-network/ Tenosynovial Giant Cell Tumor (TGCT) https://checkrare.com/tenosynovial-giant-cell-tumor-tgct/ Tenosynovial giant cell tumor (TGCT) is a non-malignant tumor involving the joint synovium, bursae, and tendon sheath. These rare tumors are sometimes referred to as giant cell tumor of the tendon sheath (GCT-TS) and/or pigmented villonodular synovitis (PVNS). Rett Syndrome https://checkrare.com/rett-syndrome/ Rett syndrome is a multisystem disorder that primarily affects girls; multiple loss-of-function mutations to the MECP2 gene are the cause of this rare disease. CME PROGRAMS Skeletal Involvement in Lysosomal Disorders https://checkrare.com/learning/p-skeletal-involvement-in-lysosomal-disorders/ Ozlem Goker-Alpan, MD, Founder and President, Lysosomal & Rare Disorders Research & Treatment Center (LDRTC) and Ravi Kamath, MD, PhD, of Fairfax Radiological Consultants & Inova Health System and University of Virginia School of Medicine Fairfax, Virginia, USA discuss best practices to identify and treat bone problems associated with lysosomal disorders. CREDITS: 1.0 CME | DURATION: 1.0 hours EXPIRES: 6/30/2026 | FEE: $0 Myasthenia Gravis Clinical Research Highlights: AAN 2025 https://checkrare.com/learning/p-myasthenia-gravis-clinical-research-highlights-aan-2025/ Dr. James Howard Jr, provides a summary of clinically relevant data presented at AAN 2025 that can enhance the care of patients with myasthenia gravis. CREDITS: 0.75 CME | DURATION: 45 minutes EXPIRES: 8/31/2026 | FEE: $0 Case Studies in Diagnosing and Managing FOP https://checkrare.com/learning/p-case-studies-in-diagnosing-and-managing-fop/ Christiaan Scott, MD, Professor of Pediatric Rheumatology at the University of Ottawa and Raphaella Stander, MBCHB, Pediatrician at Atlantic Children’s Practice, focused on three case studies to provide physicians with education on best practices to: 1) suspect and diagnose FOP, 2) monitor and manage younger children with FOP, and 3) monitor and manage older children and adults with FOP.