Meet our 2026 Regional Representatives!

https://www.rarediseaseday.org/raising-youth-voices/ Raising Youth Voices is a new initiative designed to ensure that young people around the world are included in conversations that will define the next generation of policy, research, care, and community support for rare diseases. The event will bring together youth representatives from different regions to exchange experiences, build networks, and contribute to discussions on youth engagement, patient advocacy, and inclusive health policymaking.