miércoles, 18 de junio de 2025

World Health Assembly Adopts Rare Disease Resolution Sedeer el-Showk May 27, 2025

https://www.medscape.com/viewarticle/world-health-assembly-adopts-rare-disease-resolution-2025a1000dbb As featured in Medscape last month, our CEO Virginie Bros-Facer welcomed the World Health Assembly’s adoption of a landmark Resolution on Rare Diseases. The result of years of advocacy, the Resolution calls on the WHO to develop a 10-year global action plan to advance policy, care, and research. Virginie emphasised its significance in tackling health inequities and ensuring the voices of people living with a rare disease are heard worldwide.

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