Consider Rare: Suspecting and Diagnosing Fibrodysplasia Ossificans Progressiva (FOP) Ellen Elias, MD and Christiaan Scott, MD +++

FEATURED ARTICLES Consider Rare: Suspecting and Diagnosing Fibrodysplasia Ossificans Progressiva (FOP) https://checkrare.com/suspecting-and-diagnosing-fibrodysplasia-ossificans-progressiva-fop/ Ellen Elias, MD, Professor, Pediatrics and Genetics, University of Colorado School of Medicine, and Christiaan Scott, MD, Professor of Medicine at the University of Ottawa, examine best practices to suspect and diagnose this ultra-rare condition. Watch the DAYBUE® (trofinetide) in Practice Video Series to Hear Expert Insights on the First Treatment for This Rare Disease https://checkrare.com/watch-the-daybue-trofinetide-in-practice-video-series-to-hear-expert-insights/ Rett syndrome thought leaders discuss how DAYBUE® (trofinetide), the first and only FDA-approved treatment for Rett syndrome in adults and pediatric patients 2 years of age and older, plays a role in their patients’ treatment plans, while shedding light on their personal experiences with DAYBUE in their practices. Restless Legs Syndrome Treatment and Guidelines Update https://checkrare.com/restless-legs-syndrome-treatment-and-guidelines-update/ Dr. Mark J. Buchfuhrer discusses clinical practice guidelines update suggesting against the standard use of dopamine agonists for the treatment of restless legs syndrome (RLS).