#1in15 South Africans are affected by rare diseases

https://www.rarediseases.co.za/ Rare on Air In our latest episode of Rare on Air, host Julien Poulain talks to Kelly du Plessis, CEO and Founder of Rare Diseases South Africa, and mother to a teenage son living with Pompe disease. From her fight to secure life-saving treatment for her newborn son, to empowering others through support networks, Kelly brings a global perspective to the podcast as she shares her incredible story of hope and sheer resilience. Listen as she reflects on the challenges of advocating for rare disease patients in South Africa, as well as her vision for achieving equity in access to care. https://www.eurordis.org/rare-on-air/