jueves, 15 de agosto de 2024

Framing the European Rare Diseases field through a structured movement of patient organisations

https://www.oaepublish.com/articles/rdodj.2023.58?to=fig1 Explore the remarkable 20-year journey of EURORDIS in the newly published IRDIRC paper. Authored by Maria Cavaller-Bellaubi, Virginie Hivert, Roseline Favresse, and Yann Le Cam, this paper highlights the significant milestones and impact EURORDIS has made in the rare disease community. Dive into the full article to learn more about two decades of dedicated advocacy and progress.

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