RARE REV-inar episode 028: Communication, continuity and care: Rett syndrome into adulthood 2 sept 2026 10:00 a. m.

https://us02web.zoom.us/webinar/register/WN_437qN4qZS1afdiJ0RtvCug#/registration Communication, continuity and care: Rett syndrome into adulthood This RARE REV-inar explores the transition from paediatric to adult healthcare services in Rett syndrome, examining the challenges faced by individuals, families and healthcare professionals as care needs evolve across the lifespan. The discussion brings together clinical specialists and patient advocacy perspectives to address transition planning, multidisciplinary adult care, service gaps and future opportunities for improving outcomes. By attending this webinar, participants will be able to: Understand the clinical progression of Rett syndrome from childhood through adulthood. Recognise the key challenges associated with transitioning individuals with Rett syndrome from paediatric to adult healthcare services. Identify the essential components of multidisciplinary adult care, including neurology, respiratory care, rehabilitation, communication support and mental health services. Explore strategies that promote continuity of care and effective collaboration between paediatric and adult healthcare teams. Understand the role of patient advocacy organisations in supporting individuals and families throughout the transition journey. Recognise current gaps and unmet needs in adult Rett syndrome care and their impact on quality of life and health outcomes. Consider future developments in service provision, policy, research and international collaboration that may improve care for adults living with Rett syndrome. Who should attend? This educational webinar is relevant to healthcare professionals involved in the care of people with Rett syndrome and related neurodevelopmental disorders, including paediatric and adult clinicians, specialist nurses, allied health We look forward to seeing you there! Warm regards The RARE Revolution Team