Aporte a la rutina de la trinchera asistencial donde los conocimientos se funden con las demandas de los pacientes, sus necesidades y las esperanzas de permanecer en la gracia de la SALUD.
sábado, 9 de mayo de 2026
RARE REV-inar episode 026 - Rethinking standards of care in rare diseases: what we can learn from myasthenia gravis Fecha y hora 13 may 2026 10:00 a. m.
https://us02web.zoom.us/webinar/register/WN_iDFyATGPRg-MC-kYC8GJHg#/registration
Myasthenia gravis (MG) has a patient community that pushed hard to be listened to. Now, the focus is on translating scientific and medical advances into tangible progress for those living with the condition. Join us for "Rethinking standards of care in rare diseases: what we can learn from myasthenia gravis" on May 13th 2026 2pm BST. Learn how stakeholders are coming together to address problems and improve lives.
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