Ending the diagnostic odyssey: How Europe can lead the way in rare disease diagnosis
March 2026
For many people living with rare diseases, the hardest part of their illness isn’t the treatment. It’s the wait for a diagnosis. Symptoms appear. Appointments follow. Tests are run. Specialists are consulted. And still, for what can be years, there are no answers.
https://www.eurordis.org/how-europe-can-lead-way-rare-disease-diagnosis/
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