Aporte a la rutina de la trinchera asistencial donde los conocimientos se funden con las demandas de los pacientes, sus necesidades y las esperanzas de permanecer en la gracia de la SALUD.
domingo, 25 de enero de 2026
“Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases”. 3 & 4 June 2026 in Prague
https://www.rare-diseases.eu/
The 13th European Conference on Rare Diseases and Orphan Products (ECRD 2026) will take place in Prague and online on 3 and 4 June under the theme “Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases”. The conference will bring together a broad range of stakeholders to advance concrete policy solutions that improve the lives of people living with a rare disease and their families.
ECRD 2026 will take place at a pivotal moment for the rare disease ecosystem. The conference is set to deliver concrete policy solutions to long-standing challenges through the presentation of a European Blueprint for Rare Diseases. The Blueprint will encompass proposals for an EU Action Plan as well as Europe’s broader contribution to the implementation of the WHO Global Action Plan on Rare Diseases. Participants will help shape the future of rare disease policy in Europe and beyond.
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