On 3–4 June 2026 in Prague and online, EURORDIS will host its 13th European Conference on Rare Diseases and Orphan Products (ECRD 2026) – Europe’s largest patient-led, policy-shaping event on rare diseases.

https://www.rare-diseases.eu/ Under the theme 'Rare Diseases in a Changing & Competitive Europe', ECRD 2026 will bring together people living with rare diseases, policymakers, researchers, clinicians, industry representatives and other stakeholders to advance concrete policy solutions that improve daily life for people living with a rare disease and their families. The conference will also see the presentation of a European Blueprint for Rare Diseases, setting out policy priorities for an EU Action Plan and Europe’s contribution to the WHO Global Action Plan on Rare Diseases. Read our latest article for an overview of the six thematic tracks and the key policy questions that will shape discussions at ECRD 2026. ECRD 2026: Advancing rare disease policies in a changing and competitive Europe January 2026 The 13th European Conference on Rare Diseases and Orphan Products (ECRD 2026) will take place in Prague and online on 3 and 4 June under the theme “Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases”. The conference will bring together a broad range of stakeholders to advance concrete policy solutions that improve the lives of people living with a rare disease and their families. https://www.eurordis.org/ecrd-2026-advancing-rare-disease-policies-in-a-changing-europe/