From High-Level Declaration to a Blueprint for Action: What the High-Level Meeting on rare diseases confirmed about Europe’s potential

From High-Level Declaration to a Blueprint for Action: What the High-Level Meeting on rare diseases confirmed about Europe’s potential December 2025 Europe’s rare disease community marked an important milestone last week as the three-day High-Level Meeting on European Research and Innovation for Rare Diseases concluded in Brussels. Across keynote speeches, panel discussions and political interventions, one message came through clearly: rare diseases require a coherent, long-term policy vision that no Member State can deliver alone. https://www.eurordis.org/from-high-level-declaration-to-blueprint-for-action-plan/