Aporte a la rutina de la trinchera asistencial donde los conocimientos se funden con las demandas de los pacientes, sus necesidades y las esperanzas de permanecer en la gracia de la SALUD.
miércoles, 14 de enero de 2026
Fahr better to know
https://rarerevolutionmagazine.com/fahr-better-to-know/
As the only registered UK charity dedicated to those with Fahr’s disease, Fahr Beyond offers support, guidance and a lifeline to those diagnosed with the condition. It encourages the community to pursue their passions and focus on their strengths to live a full life
Fahr’s disease, also known as primary familial brain calcification, is a rare, genetically inherited neurodegenerative condition marked by abnormal calcium deposits in areas of the brain that control movement. For those diagnosed, the journey can be complex, emotional and deeply personal. But as the UK-based charity, Fahr Beyond, reminds us, a diagnosis is not the end, it’s the beginning of a new chapter filled with resilience, adaptation and a growing community.
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