Aporte a la rutina de la trinchera asistencial donde los conocimientos se funden con las demandas de los pacientes, sus necesidades y las esperanzas de permanecer en la gracia de la SALUD.
lunes, 22 de septiembre de 2025
Reconstruction and Computational Modelling for Inherited Metabolic Diseases
https://uniamo.org/project-recon4imd/
Recon4IMD Questionnaires Are Still Open!
UNIAMO, as a partner of the European project Recon4IMD, is inviting people living with inherited metabolic diseases (IMDs), their families, and healthcare professionals to participate in two important questionnaires designed to collect valuable data for this innovative research. Your input is essential to help researchers better understand patient experiences and expectations, enabling the creation of more accurate and tailored treatments. The two questionnaires are available in Italian, English, German, Dutch, and Spanish to facilitate participation across Europe.
https://www.recon4imd.org/rationale
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