Minister for Health publishes the National Rare Disease Strategy 2025-2030 Last updated on: 18 September 2025

https://www.gov.ie/en/department-of-health/press-releases/minister-for-health-publishes-the-national-rare-disease-strategy-2025-2030/ National plans Ireland's Minister for Health Jennifer Carroll has launched the National Rare Disease Strategy 2025-2030, aiming to enhance diagnosis, treatment and support for the estimated 300,000 people living with rare diseases in Ireland. Rare Diseases Ireland CEO Vicky McGrath welcomed the strategy but stressed that “implementation is critical… ensuring that all stakeholders are equal partners in delivery will be the key to success.” Ireland unveils National Rare Disease Strategy focused on innovation The plan builds on proven global strategies, but rare disease experts say full implementation will be critical, and EU leadership is needed https://www.euractiv.com/news/ireland-unveils-national-rare-disease-strategy-focused-on-innovation/ Health Brian Maguire