The impact of living with a rare disease: barriers and enablers of independent living and social participation +++

https://www.eurordis.org/publications/rb-dailylife-report/ EURORDIS responds to European Commission’s proposed 2028-34 budget July 2025 17 July 2025, Brussels – The European Commission has unveiled its long-term budget proposal for the 2028–2034 Multiannual Financial Framework (MFF). The proposal sets out the Union’s roughly €1.8 trillion budget and spending priorities for the seven-year period, including investments in competitiveness, social cohesion, public health, and research. https://www.eurordis.org/eurordis-responds-to-eu-commissions-proposed-2028-34-budget/ Recognising the disabilities of those living with rare diseases July 2025 Between July and September 2024, EURORDIS–Rare Diseases Europe’s Rare Barometer programme carried out one of the widest-reaching surveys to date on the intersection between rare diseases and disability. https://www.eurordis.org/recognising-rare-disease-disabilities/