Aporte a la rutina de la trinchera asistencial donde los conocimientos se funden con las demandas de los pacientes, sus necesidades y las esperanzas de permanecer en la gracia de la SALUD.
viernes, 2 de mayo de 2025
RARE Round-up - keeping you up-to-date
https://editions.rarerevolutionmagazine.com/html5/reader/production/default.aspx?pubname=&edid=8f1fc7de-3beb-4f05-b4d6-f7d97a72bae3&pnum=3
We are delighted to launch our Spring 2025 edition - RARE Siblings funded by Alexion. This edition is given over to the voices that are seldom heard—the voices of our rare and super siblings. Within, you will find candid stories from siblings of all ages and backgrounds, detailing the lived experiences and the breadth of impact of siblings. This includes the emotional impact, along with significant practical implications of being part of a rare disease family.
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