#RareDiseases - The EU Action Plan must step up European-national cooperation

https://www.eesc.europa.eu/en/news-media/press-releases/rarediseases-eu-action-plan-must-step-european-national-cooperation Polish Presidency Rare Diseases Conference The need for a European Action Plan was also at the centre of the conference “Towards an EU Action Plan on Rare Diseases“ held on 10 April in Warsaw, and organised by the EESC, the Polish Ministry of Health, and the Medical University of Warsaw. Virginie Bros-Facer moderated a session on the importance of a timely and accurate diagnosis and, on 11 April, opened the side event “Bridging Research and Care for Patients" with a powerful speech on how the rare disease community drives research forward. https://www.eesc.europa.eu/en/agenda/our-events/events/conference-towards-eu-action-plan-rare-diseases/side-event-programme