Podcast: Rare on Air

https://www.eurordis.org/rare-on-air/ Rare on Air In our latest episode of Rare On Air , host Julien Poulain talks with Nick Sireau, advocate, CEO of the AKU Society and father to two sons living with Alkaptonuria. Nick opens up about his sons' diagnostic journey and the remarkable story of how a former weed killer became the first treatment for this rare disease. Tune into the episode to learn about the power of advocacy and drug repurposing, discovering the great potential of reusing existing medicines to offer a faster and more affordable treatment for patients. Listen now! https://akusociety.org/