Rare Diseases: Betting on the pharma package for timely and equitable access, still awaiting an EU Action Plan

https://www.euractiv.com/section/health-consumers/news/rare-diseases-betting-on-the-pharma-package-for-timely-and-equitable-access-still-awaiting-an-eu-action-plan/ In this recent Euractiv article, Valentina Bottarelli, our Head of Policy and Public Affairs, called for a European Action Plan for Rare Diseases to unify existing efforts and create a coherent strategy that ensures health equity, faster diagnoses, and better access to treatments. She also elaborated on the ongoing reforms to the EU's pharmaceutical legislation and their centrality to strengthening patient engagement, securing medicine supply, and fostering innovation.