Aporte a la rutina de la trinchera asistencial donde los conocimientos se funden con las demandas de los pacientes, sus necesidades y las esperanzas de permanecer en la gracia de la SALUD.
miércoles, 12 de febrero de 2025
Webinar: Results of the Rare Barometer Survey – The daily life of people living with rare diseases 🗓️ 13 February 2025 ⏰ 17:00 to 18:30 CET
https://www.eurordis.org/webinar-rb-results-of-daily-life-survey/
Rare Barometer
The main findings of our latest Rare Barometer survey will be released tomorrow! With over 9,500 responses from across Europe, our survey reveals key data on disability among people with rare diseases and the barriers limiting their access to support and equal opportunities. Join our webinar tomorrow on 13 February to learn more about the survey results.
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