Aporte a la rutina de la trinchera asistencial donde los conocimientos se funden con las demandas de los pacientes, sus necesidades y las esperanzas de permanecer en la gracia de la SALUD.
miércoles, 12 de febrero de 2025
Rare Disease Day 2025 – You Can Do More Than You Can Imagine! February 2025
https://www.eurordis.org/rare-disease-day-2025/
This global movement amplifies the voices of 300 million people worldwide living with rare diseases. With events in over 100 countries and support from 70 national partners, Rare Disease Day brings together the patient community, researchers, policymakers, and allies to ensure that rare diseases remain a global priority.
Every action counts. Whether by raising awareness, supporting research, or advocating for policy improvements, you can do more than you imagine. Together, we can ensure that people with rare diseases receive the care, recognition, and opportunities they deserve.
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