Aporte a la rutina de la trinchera asistencial donde los conocimientos se funden con las demandas de los pacientes, sus necesidades y las esperanzas de permanecer en la gracia de la SALUD.
miércoles, 16 de octubre de 2024
Podcast: Rare on Air
https://www.eurordis.org/rare-on-air/
In our latest episode of Rare on Air, host Julien Poulain sits down with Zainab Alani, a medical student at the University of Glasgow and advocate for people who live with rare diseases. Zainab opens up about her personal journey with myasthenia gravis, offering her reflections into her experiences navigating the complexities of healthcare systems. Listen as they discuss the challenges that can lead to delayed diagnoses, the significant gaps in medical education regarding rare diseases, and the emotional impact of living with a rare condition
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